the endo-experienced

bianca

“I’m supporting you because I think you’re incredible! 

Any woman who’s fighting her own war, and still takes the time to empower others is an absolute QUEEN in my opinion”

“A woman is like a tea bag: you never know how strong it is until it’s in hot water” - Eleanor Roosevelt

Direct post with PERMISSION -

“After spending over a year almost completely bedridden from pain, (what I now refer to as “the year of hell”) I’m on the mends and dedicated to finding holistic treatments to manage my endo and get my life back! I know first hand the complications Endometriosis can cause and I honestly find it a bit sickening there’s so little knowledge/research/education about it. Attempting to create a solution for this persistent pain point in my life, I’m now on a mission to educate myself while helping as many other people as possible in the process. The thing I consider my biggest mistake through my Endometriosis journey is that I didn’t get it investigated earlier. I didn’t really take it seriously at all, (after all, it was only once a month I was in pain at that point) and I definitely paid for it later in life.

If I can empower one girl to take her health seriously and push for answers; I’ll be a VERY happy little vegemite”

https://bbsendo.blog/about-me/ < for more

@bbsendo

angela

“The truth about Endometriosis...

Too many woman go undiagnosed with excruciating pain they “put up with

When I first got my period I remember being devastated - because “I’m only 13 and I don’t want to miss out on sport.. EVER!”  My mum picked me up from school that day, she looked so proud and said “welcome to womanhood!”... Little did I know it’d be a painful journey.

From flooding my bed, to walking through the corridor at school bent over crying, being taken home whenever it struck, taking days off work because of the debilitating pain, passing out on the floor of my room in the mines, to a point I got my hands on endone (prescribed pain killer) and would take it to essentially knock myself out.

This is NOT ok.. I saw several doctors, a handful of gynaecologists, did a bunch of scans, internal ultrasounds, had a ruptured cyst at one point, and changed pills numerous times... before I finally got on a waiting list for a Laparoscopy (the keyhole procedure that would finally tell me if I had this disease called endometriosis) This was AFTER I demanded it from a gynaecologist who insisted I do physio for my pelvic floor! He was positive that’s all that was “wrong”  because I didn’t have ALL the symptoms of endometriosis.

You can imagine I was fuming at the diagnosis!! “MY PELVIC FLOOR! Are you shit’n me”

My point is... if you suffer in anyway what so ever DO NOT “put up with it” YOU will know what doesn’t feel right and you MUST demand this procedure.. I finally had this done yesterday after 19 yrs of thinking it was “just normal” to almost pass out in pain and maybe I was “overreacting” and well... It was confirmed, I had endometriosis and it’s been successfully burnt off!

.

Thank you Royal Woman’s Brisbane Hospital”

@angela_sippel

evie

"I had always had ridiculously painful periods but for about 6 years

I just thought I suffered a bit more than others and it was just something to deal with. 

I took Paracetamol/ibuprofen/Naproxen but it only ever took the edge off a tiny bit so I've always just got on with it. I have been on various contraception to try and help with the pain and heavy flow but none seemed to work. It would make college and work very hard and would find myself doubling over in pain, however, the thing that brought me to the doctors was the pain during sex. It started when I was 19 and It got to the point where I would be stopping myself from screaming and would be in instant tears. 

It affected the relationship between my boyfriend and I to the point where I knew I needed to see someone. The doctor said It could be endometriosis and that I should be booked in for a laparoscopy (keyhole surgery).

They explained that the only way of fully telling I had it was to get in there and take a look and if there was any cysts they would burn them off. My mum also has endometriosis and all throughout her 20s and 30s thought she would never be able to have kids, however, she now has 4! So months later I had the surgery and they found some tissue which they burned off. Once this was done and I was healed I was told to get the coil which could stop my periods all together. I have no been on this for nearly an year and I now only get a period every 4 months or so and have found the pain when I do to be considerably less. I understand this is quite a mild case of endometriosis and that I am quite lucky as I know of people being HOSPITALIZED due to the pain! I guess I will have to see when I come off the coil, just how my body is coping with the endometriosis."

@youareawesome_co 

amie

“Hello love! I often forget that I have endo as I always assume once I had a diagnosis there would be a solution to the problem. But here I am 8 years later still having days where leaving bed just isn’t happening LOL if you don’t need anymore no worries at all! It was just too good of a coincidence to not send it to you :)”

@amielasser

Kimberli

“I was diagnosed with endometriosis in March of 2017. But I suffered with symptoms for many years. Doctors always turned me away saying my pain was normal + everything else I was experiencing was in my head. Since my diagnosis, I have been doing everything I can to share my story and raise awareness. Endometriosis is real. The pain is real. And we will continue to fight for a cure +better treatment. If endo has taught me anything, it is that I am strong and I’m a fighter

To all my endo sisters out there fighting for a diagnosis, don't you ever give up"

@life.with.kimberli

Emilia Victoria

“After years of having a “painful period” I was finally diagnosed with Endometriosis at the age of 24 via laparoscopy and excision surgery. Endo is physically and mentally one of the toughest things I’ve had to deal with. The chronic pain, fatigue, bloating, fertility issues and the effects it can have on other organs of the body....just to name a few. There are days my uterus cancels plans, not me. Not being able to go to work, hang out with friends, attend events and normal day to day activities are not even possible. Ive learnt to make the most of the good days and really rest and listen to my body on the bad days! 

To all my endo sisters, remember how amazingly strong you are, you get through some of the toughest days, I applaud you. Keep your head high”

@emiliavictoria

amber

‘women will no longer suffer in silence”

@amberxmarianne

share your experience - give as little or as much of it as you’d like & remember that your voice gives others the opportunity to recognize their own